Boston Foundation for Sight Donated SJS Treatment to Young Girl

A young girl from Uruguay has been able to avoid permanent blindness after the Boston Foundation of Sight offered the girl the “light of hope” by donating treatment in the form of a prosthetic device.

Young Damila developed Stevens-Johnson syndrome (SJS) when she was 2 years old after receiving medication. The condition caused the girl to develop a rash and blisters all over her body. Eventually, the condition caused her skin to peel off. The condition is known to cause blindness and problems with patients being able to produce tears. Damila wound up developing photophobia because of the condition, which is an aversion to sunlight and other bright lights and difficulty producing normal tears.

The family didn’t know what to do about the girl’s condition until their pediatrician, Dr. Jorge Shushman, called them to tell them about the Boston company that helps kids like Damila by implanting a prosthetic device (known as PROSE) that can prevent blindness. The family started to try to raise funds to travel from Uruguay to Boston for a visit that they hoped could help their daughter. Since the family couldn’t afford the costly treatment, the company has donated the treatment to the family and Damila gets daily treatment to help her with her vision.

The family states that Damila is doing well with her treatment and the family is learning how to be able to insert the device daily without doctor’s help. While that can be a struggle, the family is truly grateful for all that has been done to help their little girl.

If you or your child is suffering from permanent vision problems caused by SJS, contact attorney Greg Jones today for a free consultation. I am experienced at fighting SJS cases like these and may be able to help you recover money for your medical expenses.

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